Microscope | January 2018

On Behalf of All Researchers, Patients and Families . . . 
THANK YOU

Thank you for the incredible support you have provided throughout the past year, making a difference in the lives of so many people impacted by blood cancers.

A simple thank you doesn't sound like nearly enough, given the magnitude and impact of your generosity on the mission of the Leukemia Research Foundation (LRF). It helps us continue funding worldwide medical research, providing need-based patient financial assistance, and offering complimentary educational programs for patients. Your contributions are timely. New research project applications are coming in every day and soon we will begin funding another year of breakthrough blood cancer research. You can see the current projects we are funding here.

Every dollar, every hour of time, every share and follow on social media helps the LRF support more patients and brings us closer to discovering blood cancer cures while advancing better treatments.

 

RESEARCH UNDER THE MICROSCOPE

Image of Dr. Hui Feng

Hui Feng, M.D., Ph.D. 

Investing in Blood Cancer Cures

Research funding from the LRF comes at a critical time in the careers of blood cancer researchers. A $100,000 grant from the LRF can also lead to additional funding from organizations like the National Institutes of Health (NIH).

Hui Feng, M.D., Ph.D., Assistant Professor, Boston University School of Medicine, was funded by the LRF in 2015 for a research project titled Dissecting the Regulatory Role Of Dlst In Myc-Driven Leukemogenesis. She recently earned a $792,000 grant from the American Cancer Society and results from her study were published in the journal Leukemia. An abstract of those results can be read here.
 

Image of Olga Frankfurt M.D.

Olga Frankfurt, M.D. 

New AML Medications Discussed

Olga Frankfurt, M.D., Associate Professor of Medicine at the Feinberg School of Medicine of Northwestern University, discusses the group of new acute myeloid leukemia (AML) medications recently approved by the U.S. Food and Drug Administration (FDA) in an interview conducted by OncLive. Four approvals in 2017 have meant significant improvements in AML patient outcomes. Click here to read the interview.

Dr. Frankfurt is a frequent presenter at LRF Patient Education Programs and has been a supporter of the LRF for many years.
 

Image of researchers in lab

Deadline Approaching for Research Grant Funding Letter of Intent

The deadline for Letters of Intent (LOI) submission is fast approaching. The LRF awards grants up to $100,000 to New Investigators, researchers who are within seven years of their first independent faculty appointment.

Details can be found on the LRF website by clicking here. The deadline for submission is Thursday, February 1, 2018 at 11:59 p.m. Central Daylight Time. Questions must be submitted by email to Grants@LRFmail.org.

 
 PROGRAMS UNDER THE MICROSCOPE

image of Kids' Party attendees at art table

 Olympic Fun for Pediatric Leukemia and Lymphoma Patients

Pediatric leukemia and lymphoma patients between the ages of three and 16 are invited, with their families, to the Annual Kids' Party on Sunday, January 14, 2018 from 10:30 a.m. until 1:00 p.m. at the Westin Chicago North Shore in Wheeling, Ill. The Olympic-themed event will feature an appearance by the Jesse White Tumblers, as well as a buffet lunch, arts and crafts, a DJ, goody bags and much more! Admission is free.

Please RSVP for the event by calling the LRF at 847.424.0600. Each patient may bring up to four family members.
 

image of Town Hall Meeting participant asking question

Spaces are Filling Fast – Register Now for Town Hall Meeting

A panel of medical experts will answer your questions about blood cancers at the Annual Town Hall Meeting on Sunday, January 21, 2018 at the Skokie Banquet and Conference Center in Skokie, Ill. The program is specifically designed for patients, survivors and loved ones. Admission, parking and refreshments are free.

The program features three hours of questions and answers about blood cancer treatments, side effects, medications, and any other blood cancer questions. Click here to register.
 

Image of leukemia survivor Marjorie Reynolds

Survivor Appreciates Town Hall Meeting

The LRF hosts patient education programs annually to support patients and families coping with blood cancer diagnosis. The first of such programs for 2018 is the Annual Town Hall Meeting  which will be held on Sunday, January 21 from 1:00 p.m. until 4:00 p.m. A similar program is held later in the year and conducted entirely in Spanish.

Marjorie Reynolds is a hairy cell leukemia survivor who was diagnosed in 1982 and has been attending the Town Hall Meeting regularly since 2005.

How did you find out about the Town Hall Meeting?

"I learned about the LRF through neighbors who were living with a leukemia diagnosis in their families. During that time I made a donation to the LRF and it was through literature that was sent to me that I found out about the Town Hall Meeting. Really I started attending out of curiosity since I was not being treated aggressively. I thought it would be good for me to learn the latest information about leukemia in case things changed and I needed something.

What benefits have you gained from attending the Town Hall Meeting?

"The doctors are very interesting to listen to and so are the other patients. I’ve formed friendships with some of the other patients ever the years; the ones who also have hairy cell leukemia and others. I don’t tend to talk about my leukemia often but the Town Hall Meeting gives me a chance to talk about it with people who are going through the same kind of experience I am."

Why do you continue to attend? 

"I keep going because information changes all the time and I find learning the new information fascinating. Also, about eight years ago my brother was diagnosed with lymphoma so I keep attending to learn more about lymphoma, as well as my own leukemia."

Would you recommend the Town Hall Meeting to other blood cancer patients and if so why?

"I had the opportunity to recommend the Town Hall Meeting recently. I was at a store and I overheard a woman talking about her husband’s recent diagnosis and she sounded anxious. I asked her if she had ever heard about the LRF’s Town Hall Meeting and she had not. So I gave her the website and told her about the meeting coming up in January. I told her that she would learn about the latest treatments and learn what other patients are going through and she seemed to appreciate the information. I also told her to come with all of her questions because they would be answered.

I think the Town Hall Meeting offers hope to people. I’ve made it to most if not all of the meetings since 2005. I learn the latest information about how patients are being treated. I learn about lymphoma for my brother as I mentioned. Both of my in-laws had multiple myeloma so I learn about that. I’m also an identical twin so I worry about my sister being diagnosed. She has not at this point and I’m happy about that. If I have a choice I will not miss the Town Hall Meeting."

 
EVENTS UNDER THE MICROSCOPE

Image of woman jumping at Gibbons 5K

Plan for Summer and Register for the
ABC 7 Gibbons 5K Run 
and 3K Walk

Thursday, June 21, 2018 is not only the first day of summer, it’s the date of the 24th Annual ABC 7 Gibbons 5K Run and 3K Walk. Register today and join the LRF as we bring the fight to cure blood cancers to Chicago’s Grant Park. The ABC 7 Jim Gibbons 5K Run and 3K Walk has something for all runners, walkers and volunteers who want to be a part of finding a cure for leukemia, lymphoma and other blood cancers. The run start is broadcast LIVE on ABC 7 Chicago during the 6 p.m. newscast.

Sponsorships are available for this event. Find registration information, times and more at www.Gibbons5K.com or call 847.424.0600.

   

EVENTS IN FOCUS

January 14, 2018

Pediatric Blood Cancers Kids Party

January 20, 2018
Alden Village North and Alden Village
Skeeing for a Cause


January 21, 2018
Town Hall Meeting

February 8 - 13, 2018
Donald Davidson-Alan Brin
Memorial Chapter
Ski for Research

May 2, 2018
2nd Annual Road to a Cure

June 21, 2018
ABC 7 Gibbons 5K Run and 3K Walk

August 3-5, 2018
Kingfish Shootout
Carrabelle, Florida

August 10, 2018
Joey's Angels Chapter
17th Angels in the Fairway Golf Outing

 

Visit our website to view more upcoming events.

We will continue to keep you apprised of our noteworthy achievements.
Please visit us on social media for regular updates.

Thank you again for your incredible support. You make our work possible.
Stand for life. Fight for life. Give for life. #LRF4LIFE.

 DONATE

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LRF

191 Waukegan Road, Ste 105

Northfield, IL 60093

Office: 847.424.0600  |  Fax: 847.424.0606

allbloodcancers.org